National Standards for the Birth of a baby with Cleft Lip and/or Palate

Details

Published on Wednesday, 30 March 2011 14:02

Aim
These are the minimum standards of care that should be offered to families following the birth of a baby with cleft lip and or palate.

Standard 1.
All babies born with a cleft lip and/or palate are to be diagnosed at birth.

Standard 2.

All babies are to be referred by relevant professionals to the cleft team within 24hrs of diagnosis

Standard 3.
The Clinical Nurse Specialist should visit within 24 hours of receiving referral.

Standard 5.
At the first visit a feeding plan should be devised and documented that supports the mother’s preference for feeding

Standard 4.
All babies should have a nationally recognised feeding assessment prior to the introduction of assisted feeding

Standard 6.
All mothers who choose to breast feed should be offered an electric breast pump, for as long as they require, at no cost to themselves.

Standard 7.

All parents to be offered

1. Counselling and support
2. Verbal and written information re cleft treatment and management
3. Contact with a family of a child with a similar diagnosis
4. Written information about CLAPA.

Standard 8.
All babies with cleft palate referred to local audiology/ENT

Standard 9.
All babies should be visited at home by Clinical Nurse Specialist within one week of discharge SIG audit committee Jan 05